Few words can change a parent's world as quickly as, "Your child has cancer."
In an instant, life can feel divided into a "before" and "after." Questions come rushing in. What happens next? What does this mean for my child? How do we get through this?
If your family is facing a new cancer diagnosis, it is important to know that what you're feeling is normal. Fear, uncertainty, sadness and even numbness are common in the days that follow.
While every child's journey is different, you do not have to navigate it alone.
Top Things to Know After a Childhood Cancer Diagnosis
A childhood cancer diagnosis can bring uncertainty, but there are important things families should remember:
- You do not have to process everything at once. Take things one day, one appointment and one conversation at a time.
- More testing is often part of the process. Additional tests help your care team better understand your child's diagnosis and treatment options.
- There are no wrong questions. Your care team can help explain what to expect and connect you with available resources.
- Support extends beyond medical care. Resources are available to help support the emotional, practical and day-to-day needs of the entire family.
- Taking care of yourself matters, too. Accepting help and leaning on your support system can make a meaningful difference.
What Happens Next?
After a diagnosis, your child's care team may recommend additional testing, such as blood work, imaging or other procedures. These tests help doctors learn more about your child's specific diagnosis and determine the most appropriate treatment plan.
"One of the hardest parts for families is not knowing what comes next. Our job is to help create a roadmap,” says Dr. Ashley Hinson, interim division chief of Atrium Health Levine Children's Cancer & Blood Disorders. “As we learn more about your child's diagnosis, we'll help you understand the plan, what to expect and what each step means for your child and family."
As new information becomes available, your care team will walk through treatment options, answer questions and help you understand the next steps. It is okay to ask questions, take notes and revisit information as you process it.
Questions to Ask Your Care Team
The days following a diagnosis can feel overwhelming, and many parents worry about asking the "wrong" question. The truth is there are no wrong questions.
Families may want to talk with their care team about:
- Available support services
- School and education resources
- Mental health support
- Financial assistance programs
- Child life services
- Ways to help siblings cope
"We want families to know that our support extends far beyond treatment plans. We're here to take care of your whole child, and your family too," says Hinson. "If something is causing stress or uncertainty, bring it up. Our team can often connect families with people and resources who can help."
Helping Your Child Cope
Children respond to a diagnosis in different ways. Some may have lots of questions, while others may seem withdrawn, worried or overwhelmed.
Experts encourage parents to have honest, age-appropriate conversations and create space for children to express their feelings.
"Children often look to the adults around them to understand how they should respond to difficult situations,” says Hinson. “Being honest, listening to their concerns and reassuring them that they are surrounded by people who care can help them feel more secure during an uncertain time." We also want the children to know they can speak up too! When they have questions or worries, we want to know them so that we can help answer and address any issues or concerns.
Sometimes the most helpful thing a parent can do is simply be present, listen and remind their child that they will face each day together.
Taking Care of Yourself, Too
Parents naturally want to focus all of their energy on their child. But caring for yourself is an important part of caring for your child.
Whether it is accepting a meal from a neighbor, talking with a counselor, taking a walk or leaning on family and friends, support can help lighten the load.
"Parents naturally want to put all of their energy into caring for their child, but you cannot pour from an empty cup,” says Hinson. “Accepting help, taking breaks when you can and finding time to care for yourself are important parts of caring for your child, too."
Asking for help is not a sign of weakness. It is one way of ensuring you have the strength and support needed for the journey ahead. Not sure where to start? Our team can help with that too!
The Road Ahead
The days and weeks ahead may bring new information, difficult moments and unexpected challenges. But you do not have to carry those burdens by yourself.
"We remind families every day that they do not have to carry this alone," says Hinson. "Our team is here to answer questions, provide support and walk alongside families throughout their child's care."
To learn more about pediatric cancer services and support resources available through Levine Children's, speak with your care team or visit our website.
